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| Sunday, August 22, 2005 |
| 08.21.05 (7:35 pm) [edit] |
Morning:
John is in a room. Finally. Moved today around 2pm. 7115 on the 7th floor of the Queeny Tower, and he has a phone. Call him between 7am and 9pm at 314-362-6397. He still has his trache but can talk. It's being downsized tomorrow and he will get his swallow test. He was weighed today and he weighed 164 pounds. Hopefully he will be eating soon.
Evening:
John got to eat dinner! They removed his tube from his nose and he is actually eating and drinking(that's right, he couldn't even drink). He passed his swallow test. His biopsy cam e back negitive for rejection. His ultrasound on his legs came back so far showing no blood clots. He got to take his first shower in 39 days. Over 5 weeks. With alot of help from me and sitting down of course. Ok. A lot of help from me. He was very happy to get his hair washed. They are still giving him insulin shots, due to high blood sugar, but the hope is it will go down as he eats more, and exercises. He weighed 163 pounds and hopefully will gain weight now that he can eat. His docters say he could actually be home by the end of the week. This is truely a mircle.
I need to add something to one of my earler posts about how they do the transplant lists. I had said that as soon as last year they didn't place people on a transplant list by need, but they waited until their name came up on the list. Well it didn't change last year. It changed this year. In May. Two months before John's lungs stopped working.
If John had went through this same thing two months earlier, he probably wouldn't have survived due to being placed on a list and then having to wait. And wait. Need didn't really play a part in how you got organs, and the wait could end in death.
# More than 85,000 people are currently on the waiting list for an organ; more than 6,000 people per year are dying while waiting. –United Network for Organ Sharing, March 14, 2004
# The waiting list for organs grows by an average of 19 percent every year. –United Network for Organ Sharing.
# In 2003 80% of transplant list candidates died waiting for organs. -Emery P. Dalesio / Associated Press
Waiting list candidates 89,109 as of today 12:51am
Transplants January - May 2005 11,514 as of 08/12/2005
Donors January - May 2005 5,923 as of 08/12/2005
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posted by: Nicole Z (reply)
post date: 08.23.05 (7:42 pm)
Hi, I know Brittany from school. I've been reading about you and all of what has been happening and my heart goes to you all! You have to be a very strong person to be able to cope with all of John's problems and to try to be there for your kids, just going through this all and not breaking like some people. I don't think I could ever under go all of this. John is a very lucky man to have had those two months before he "lost" his lungs, and he is even more lucky to have you and all the family and friends that care so deeply. And when I read about the blood clots my heart stopped my mom had two of them and it took over two months of lovenox(like heperin) shots to get to where she could just go to the pill coumadin, he is lucky they dissolved. When I first read of all this I turned to my mom and told her what you wrote and she even said it was amazing(and she's been a nurse for 27 years!). I wish I knew the right words or a way to help but I don't. But I can say that you are in my thoughts may all of this turn out well!
* I'm glad John has set a date to want to get out by, all the times i've had surgeries and it helped me to set a date to try to recover by, I think that by doing that it gives you inspiration
** September 10, 2005 is a good wedding date, my older sister is getting married that day!
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