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| Tuesday, August 16, 2005 |
| 08.16.05 (7:51 pm) [edit] |
Yesterday, John was a bit discouraged, due to several things going on. I'll start from the bottom up. They did an ultrasound on his legs to check on the blood clot, and it was still there, and had not gotten smaller, and there is now one in his other leg. His blood count was fairly stable but there was a little bleeding from the ulcer in his upper intestines, that I'm now told, was in a dangerous place and being watched due to not only possible bleeding, but to make sure it doesn't get worse and become a whole. No food(tube feedings),due to the ulcer, but they feed him once in the morning a small amount to see how he tolerates it and what his blood counts look like. A lower dose of blood thinner for the ulcer so it doesn't bleed, but that isn't good for the clots. He gets his blood thinner as a shot in his stomach, and after all these weeks, his stomach is very bruised. Lungs are doing fine, back on the T for 24 hours at least. Trache and nose tube that he hates, and he wants to breath out of his mouth and nose, and of course talk and eat. I was supposed to work, but I didn't actually make it yet.
Today, better. They took off the T, and replaced it with a little piece of cup like thing with a strap for his neck, that just warms the oxygen and doesn't actually fit over the trache tube, just around it, and can be moved or removed, and is sort of like a cannela for the trache. They said that the clots need to be watched closely, and he will need an ultrasound every week. If they move, he will need an umbrella type surgary for his heart/lungs to keep them out. His blood count came up a point, so they restarted tube feeding. They problem is that they cannot go back to full strength on the blood thinner for at least two weeks to disolve the clots due to his ulcer rebleeding. Then they still have to treat them for 6 months or so. He walked to the second corner of the nurses desk. They came in and removed the ballon in his throat so he can eventually eat, and maybe talk, but when they do that, the fluids that have built up on top of it end up in his lungs, and he has to cough them out. Whitch he did, and he has a suction thingy to help get any fluids pulled from the mouth of his trache. He said it was easier to breath now, and he has some airflow around the trache into his nose and mouth, but not enough to really talk yet, and I heard him say "Hi Cathy", and "no". He was fine, and they are supposed to down size the trache to allow more air flow around it, into his nose and mouth tomorrow. The problem is, that when I left at 11:30 pm, he was still coughing up stuff, and i think his oxygen would go down, then come back up. It's hard to tell because his oxygen reader is on his finger, and maybe not picking up correctly. It was changed today, and when you touch it you can possibly change the numbers. But I made sure he could suction his trache when he coughed by himself before I left. They also turned down the mositure on the warmer, because that would possibly make him cough with the moisture going into his lungs. I get so nervous and scared when he coughs, or his numbers change at all, and I panic, and don't want to leave. I think I can make sure he's alright if i'm there, make sure he doesn't choke, or can breath, or at least get a nurse. I finally made myself leave, cause I was freaking myself out.
Things I've missed:
The kids go back to school tomorrow.
I missed my sister's birthday on August 6,(she was out of town), Happy Birthday to Susie I missed my neice's birthday on Agust 4, Happy birthday Cara
I missed my daughters' graduation Cum Laude, Congradulations Shannon
I missed work for three days so far, Sorry Work
i missed my daughter Brittany's first Choir/Parent meeting of the year, Sorry Brit, we are going to try and go to all the rest of the meetings.
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