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| Friday, August 12, 2005 |
| 08.12.05 (6:28 pm) [edit] |
Oh my, so much good news. I talked to my daughter and I was at the hospital with John, and she told me Liz from Bassler called and they had had the fund raiser, and I told John about the fund raiser, then I asked him to guess how much money they made.. and he thought for a moment and said 500? And I said "close, Almost 2000!" and his eyes got so big! And we got so emotional.. that's one way to say we just cried. We are so greatful for all the help, and want to let everyone know. So our insurance for COBRA is payed for September(which is when John's insurance runs out), and 1605 goes into the trust fund into an account at the Edwardsville Bank i believe called the John F Nicol trust fund to pay for hospital bills, and anyone can add money into it. I will get the exact name for the site. You would think i would know wouldn't you.. but I don't.
It's been two weeks since the transplant. Yesterday was one month since he entered the hospital, and Sunday my one month parking pass expires. How time flies.
I had to do some laundry this morning(no dry towels), and get gas, and go to the bank, and didn't get into John's room til around 10:30, and he was upset and thought I wasn't coming. He said he needed me, and I figured out he needed me to stay with him today. So of course I did. And since the next two days are my days off, I'm hoping he is feeling better about me working on Monday. He was in his chair, and he had walked to the door today. He went on the T a little before 9 and the plan was to leave him on it for 24 hours. Also to walk again to the door or farther, do another eating test, and possibly move his feeding tube to his stomach. So when it was time to walk, he didn't want to, and he was breathing kind of hard, so they let him rest for a few minutes, then told him he couldn't sit down, till he walked to the door, so he walked real fast to the door, then sat. We were all laughing and the nurses said it was the fastest they had ever saw him move. His tube came out of his nose accidentally, and they discussed putting it into his stomach, but it's a surgical proceedure and even though he wanted it done, the docters determined it would be more risk that way, so he had to have it reinserted into his nose. He hates it when it goes in. They only put it as far as his stomach so they can only feed him every four hours. But he let them put it there because he wanted his pain medication, and the stuff they are giving him now is just percaset and they use the feeding tube to give it to him, and couldn't give it to him without a feeding tube. They decided against the eating test today, and will do it on Monday because they feel it's too soon, but still feel like his paralized vocal cords may be temperary. They will look this weekend to put in something so he can talk, he just needs to be breathing on his owh, without the vent for 24 hours, which he is doing today. Also hopefully he will be out of ICU by Monday. His nurses last night let him sleep, and the night before he said the nurse woke him every hour. Tonight they said they would let him sleep also. We talked, and he can write now, and I talked alot more then he did, and told him some of the things he missed over the last 4 weeks. We said again we should marry in the hospital, and the nurse heard us, so she had the chaplin call me, and the people who need to take care of that are off until Monday. I will recheck on these things Monday. I left at 10 because he was going to sleep(he said)and he wants me to come in at 9am. I left him fairly content.
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