Teusday August 2, 2005


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Teusday August 2, 2005
08.02.05 (4:58 pm)   [edit]
On Monday, yesterday, when I got to the hospital at around 10 a.m., they wouldn't let anyone go back because they were doing a proceedure on someone. The social worker was there I found out, but we didn't get to talk to her. We finally went back after noon, to find that they had sedated John again, they said he bacame agitated when he woke up. High blood pressure, and pulse. I say, it's because he forgets he had a transplant, and they don't tell him, and don't want me to spend the night. I wasn't happy.

We sat with him, and he would come out of it a bit, and sort of open his eyes, and I would tell him he got his transplant. Then they would knock him back out. The nurse kept saying they wanted him calm, to not talk to him, yet they weren't in there, let him wake up, and kept the lights and radio on. So I talked to him, calmed him, and let him know he had lungs. I really can't stand some of the nurses up there. Some are great... some need an attitude/training adjustment. So I stayed because Scott was his night shift nurse, and we had an experience with him already, ignoring John. So when John came too, I was there. At 2 am I went to the waiting room(they didn't offer me a chair in the room), and slept on the floor till 6 a.m. The docters came in and said we will wake him again. The same nurse from the day before came in and said they wanted to wake him but I should be quiet.(too late for that, as he had already started to rouse, and I told him he had lungs, be calm!) He woke up, and of course the nurse was off, to see to her other patient, and I was left with him while he was trying to get his leg off the bed. So we sat him up a bit, and he still couldn't see, but he would answer questions. He knew his mom when she came in, but she mentioned the kids, and he didn't understand. (he would shrug his shoulders if he didn't know) I asked him if he knew who his mom was, and he did, and I asked him if he kew who I was and he said no. So ok. As the day wore on, they sat him in a chair. He could move his feet a little, and his hands, and head. He was exercising his legs and arms a bit though, and tried to stand(that wasn't happeneding), and couldn't really get comfortable. He was mad at the nurses, and said they hurt him(they did when they put him in the chair), and then he got mad at me when I wouldn't give him a drink, and stuck his bottom lip out, and wouldn't talk to me anymore. I said "you probably don't like me, huh?" and he said shook his head no. I said but you love me, and he shrugged. Still didn't know me. The Reverend Dave came in and John knew him, and wanted him to pray with us. So we did. John got a little frustrated, because he wanted to tell him something, but we couldn't understand what.
They put him back in bed, and he got upset, and said they hurt him again. We told him it was not on purpose. He said yes it was. So Chrissy came with Bobby and Laura, and he knew them, and he tried to wave at Bobby and Laura. He wanted a drink, so i gave him a swab, but he wanted more, and made faces at me. It was pretty funny. His parents left to eat, and his mom said "can i go?" and he said yes, and she said,"can Cathy stay with you?" and he said no. I said, you want me to go? and he shook his head yes. So I left, for a second. Come on, did you think I'd leave him? He was a bit agitated that I left, he just didn't know why. While Chrissy was there, he complained again that his nurse hurt him on purpose, after she cleaned his trache. He would mouth stuff, and we would ask questions. I explained that he had his lungs, his transplant and it was ok, as it was going soon. He said no he didn't. So while Chrissy was there, we convinced him he did, as he'd forgotten again. They left, and he mouthed "I love you, bye", to Laura, and I said "ya, he won't say that to me, he doesn't know who i am", and he turned to me, looked(as he was seeing a little), really studied me for moment and said "I love you, too". I said I know, and cried. And I tried to get him to sleep, and he suddenly realized he couldn't see, and got upset, and I explained stuff again to him, but he knew me, and he understood, about the vision, being calm, the cathater, the tube feeding(which I couldn't REALLY dwell on, as he hates it), and he was so emotional, and his stats went up. But he understood, and I could see the clarity in his eyes,(well, there were still moments when he would look drugged), and he understood about his lungs, the trache, the vision, and when I asked him to calm down, to lower his pulse, he looked at me like I was crazy. I laughed, and said he could do it, by calming down, so he asked to watch T.V. and wanted the Fish tank channel. It's a channel on the hospital tv that is a radio station, and shows a live feed of a fish tank in Children's hospital. We watched it before together. I was surprised, until I remembered that fish tanks were supposed to calm you. After he blew me a kiss, not just any kiss, but only the way Johnny has ever blown me a kiss, I knew he was in there, and if he forgets everyday, I'll keep reminding him, and I know eventually he will remember. His muscles can be improved again with exercise and physical therepy, but his mind... I was worried. And If he has lost stuff.. well, we can work on it.

His parents came in, and he was still to high on his blood pressure, and pulse, as he was still digesting the good news, that he had lungs, and the nurse wanted us to go home so he could rest. So we did, but I asked her to put notes in to advise his nurses he forgets he had his transplant, to tell him, and not let Scott ever shave him again. (he is a bloody mess) Going back tomorrow, but right now, it really looks like a miracle.
 


posted by: Shawn Moore (reply)
post date: 08.03.05 (6:59 pm)

Hi Cathy. My name is Shawn Moore and was a classmate of John's in the CCNA program. I would just like to wish you well, and hope that John has a quick recovery.

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