|
John is doing Great! He has another broncoscopy schedualed for Friday morning. This will be his second since his release from the hospital, and this one signifies his 3 month marker. If this broncoscopy comes back negative for rejection, we can put away fears of CHRONIC rejection until after 5 years or so. There are other forms of rejection they will be watching for, but those are more treatable. John was going through a period of nausea right after his last broncoscopy, and it got severe. They stopped the Cellcept, one of his rejection drugs, temporarily, to ascertain if that was the culpret. It was. So now he will be taking the Cellcept coated specially to avoid nausea.. the problem? INSURANCE. Thgy have been giving us trouble about meds ever since he got out of the hospital. His insurance provider changed right before all this happened, and this insurance company has a list of meds, and is very picky about quantity. Some meds could only be picked up 15 days at a time, some are not covered and had to be switched, even his diabetic kit had to be changed. They still haven't provided the sperometer he needs (a special device he breaths into every day to determine lung function and help figure out if he is having rejection), and we have been waiting for this device since he got out of the hospital. So they say they will only cover this medication at a SPECIALTY Pharmacy. ??? This is a medication he needs For the rest of his life! Without the medication, he will go into rejection of the transplanted organ. So now we are trying to figure out where or even what a specialty pharmacy is.
The Benefit is counting down until the day! OCTOBER 22, 2005 @ 7:00pm. We are still looking for donations from businesses and individuals for the silent auction, and for food, and actually anything you can think of, like baskets, and gift certificates. Tickets can be purchased at the door for $15 and with that you get food and drink. There will be dancing and karaoke, a raffle for a shotgun, and silent auction. So come on out for a fun evening to show your support for John and his family, and don't forget... SIGN THE BACK OF YOUR LICENCE FOR ORGAN DONATION!
|