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| Teusday, September 21, 2005 |
| 09.21.05 (6:20 pm) [edit] |
John's birthday was Sunday. He is 42 years old, and happy to be this old I'm sure. Saturday was the yard sale at Nickie's and I didn't get to stop by since I had to work this weekend. John still wasn't driving yet so he didn't get to go over there either. Monday he had his first broncoscopy since being released from the hospital. He had several in the hospital including one at his 3 week anniversary of the lung tranplant to check for rejection. This one also should be checking for rejection and we see the docter today for results. I went with him in the morning for the proceedure, then was able to stay until they brought him into recovery, before I had to leave for work. His mom brought him home, and he slept most of the day. Yesterday I was off work, and we went to the Walmart, and John drove home. It's only a couple of blocks, but he wanted to drive. I drove into rehab today, but Friday it will be 8 weeks since his transplant, and he feels he is ready, so we will talk to the docter or coordinator about him driving, and maybe exercising. He weighs about 170 pounds, and is still on insulin, but they redused the amount during the day he takes. The problem is that his blood surgar is mostly normal or even low except in the afternoon/early evening hours when it can get really high. He takes a long acting insulin for that, but it doesn't seem to be doing it by itself, so he also needs a shorter acting insulin, but that can make his sugar go very low at night. So when that happens we get up, and feed him something to bring it back up. Low blood sugar is a bigger concern to the docters the high blood sugar. He isn't have tremors as bad, and is becoming accustomed to most of his medications, but there are still alot of them, and probably always will be.
I can't believe we are married, and i still get so scared sometimes. It's VERY hard to believe that he has lungs, that aren't his own, that saved his life. But the reality of rejection, and statistics are just frightening. We have to really not dwell on facts sometimes, and just trust God and the docters and hope for an almost normal life again. But realistically, it will never be the same. There will always be docter's and that's ok, and the appreciation of life, and hope that we have alot of years left together. He will make a wonderful grandfather.
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| Sunday, September 11, 2005 |
| 09.11.05 (8:41 am) [edit] |
Yesterday was our 11th anniversary. So we got married. YES! We are now legally married. It was a wonderful ceremony, and a very special celebration afterwards at John's cousin's house, Penny. His cousin's provided a beautiful cake, food, guest book, picture book, and even glasses for the toast. It couldn't have been a more perfect day.
John is going to rehap every morning. He gets his labs drawn twice a week, to check his levels of his antirejection drugs, and steriods, and blood counts, and just about everything else you can think of. He sees the docter every other week now. He is down to two insulin shots a day. He weighs 165.8 pounds. He is walking without the walker, and he is only a little slow, and he can stand pretty long before he gets tired. He stood for the whole ceremony and for several pictures afterward before he had to sit and rest.
I am working full time again, but his parents are getting him to his rehab and labs most days. I don't think we would ever have made it through this without family.
There is a yard sale at Nicky's house in Collinsville this Saturday. I will be working probably, but I'm sure John will stop by. I want to thank everyone for everything so far, and John will be writing out some thank you cards soon, now that his writing is getting easier for him.
The benefit is coming along nicely, and there is a raffle and I will get details and post them.
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